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We Are All Research Subjects Now - The Chronicle of Higher Education
political terrain can shift beneath researchers’ feet. They are not the only arbiters of what the public, or their own research subjects, will accept. A bold research agenda, even a celebrated one, can swiftly be derailed by ethical missteps. The SSRC-Facebook collaboration might draw that lesson from the 1960s, too.
facebook  ethics  academia  consent  methodology 
3 days ago by jomc
We Are All Research Subjects Now - The Chronicle of Higher Education
These brakes on social inquiry are the same ones that academic researchers labor under — and sometime chafe under — today. And they are the same ones that the Social Data Initiative enlists in its public statements. But we should note that they were designed for research situations like the tearoom ethnography: where the privacy intrusion was intentional, where the potential harm to individuals’ dignity was obvious, where specific consent from the human subjects might feasibly have been obtained, and where careful scholarly review might have prompted a more ethical research design.

The data sets that Facebook plans to hand over to SSRC-approved researchers are by nature quite different. They first of all are being used only after the fact, having been collected via no peer-review process by a for-profit company. Accepting the terms of service of a social-media company is a far lower bar than the "informed consent" required by an IRB. These will be reams of personal data, possibly quite sensitive, and gathered unobtrusively, without the express consent (and often, knowledge) of those being researched.

It is not even certain whether the donors of data in this new venture are "research participants" in the sense that social scientists of the last century would have recognized. Some commentators have argued that because the company’s data will be anonymized before researchers get ahold of them (itself a concern as re-identification techniques improve), standards of informed consent do not even pertain.

Can the protections intended for a relatively small group of identifiable subjects in a bounded study — the men in St. Louis’s public restrooms in 1966, say — be extrapolated to the more than one billion virtual subjects who have been swept willy nilly into Facebook’s informational cache? The SSRC, in its early statements about the Social Data Initiative, seems to believe so. But today’s system of IRBs and federal regulations ought not be treated as definitive, especially given the new risks and possibilities presented by industry partnerships and big data.

Rather than accept the solutions of the 1960s and 1970s as a given, the new initiative would do better to reopen the questions that Tearoom Trade and other cutting-edge social research of its day generated about the legitimate bounds of social inquiry. The regulations that emerged were important, but so was the larger claim that human dignity ought to serve as an essential check on research ambitions....

For those who care both about pathbreaking social research and the rights of human subjects, the SSRC-Facebook collaboration poses dilemmas equivalent to those raised by Tearoom Trade. It is an opportunity to reconsider, and possibly revise, the rules of social inquiry. Are the guidelines for ethical research and treatment of subjects that were devised nearly 50 years ago a durable resource for us today? What kind of help can these tools, forged in quite different conditions, offer us in resolving the potential privacy violations and misuses of personal information that threaten today’s unwitting subjects of social media — and perhaps now scholarly — experimentation and manipulation?...

If we are all research subjects now, what kind of practices and policies will best preserve the values of individual dignity, privacy, and consent?

Given the unique nature of the new collaboration, these questions should be directed to the social scientists who will be making use of novel data sets. But they must also be answered by the corporations and data miners they collaborate with. If the byproduct is a new standard of data ethics with a broad purchase — viewed as the responsibility not simply of academics but also of the multifarious parties now engaged in social and behavioral research — that will truly fulfill the SSRC’s mission to "produce findings that improve everybody’s lives."
research  methodology  ethics  digital_methods  social_science  consent  IRB 
5 days ago by shannon_mattern
Costumes, Consenticorns and the New Rules of Nightlife
Women-run, NYC club called "House of Yes".

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I asked her the biggest lesson being a consenticorn had taught her. “That heteronormativity is really fucking weird! So many guys are like, ‘Hey, I’m here to look at skin, not show it!’” She shook her head. “Dude, if you want to participate in a sexy party, participate in a sexy party.”

It’s not only men who sometimes require reeducation. “Lots of girls think they should get in for free,” Madame Viv points out. “I tell them, ‘Ladies, this is something that the patriarchy has put in place. They let you in for free so you can get drunk and people can take advantage of you. You are not a commodity! You are a human being and you are part of this experience!’

“So then they’re like, ‘Yeah!’ and then I’m like, ‘So it’s $50 per person!’”
consent  nightlife 
8 days ago by gunsch
GDPR and ePrivacy compliant online tracking | Cookiebot
Service that monitors and controls your website cookie consent
webdev  web  use  cookie  compliance  gdpr  privacy  service  consent  monitoring  control  js  javascript  script  api 
9 days ago by piperh
Twitter
A teacher made this chart to teach to kids. I think a whole lot of adults need this just as much tbh

Say…
consent  from twitter_favs
9 days ago by ritwik
Consent
Isobel Yeung hosts this 30 minute correspondent-led, VICE News documentary that investigates the state of consent among young adults today, and efforts at colleges and universities to normalize affirmative, or enthusiastic, consent in sex. It culminates in an intense, anonymous, candid, restorative justice conversation between a woman and her college rapist.
rape  culture  consent  patriarchy  misogyny 
11 days ago by jbuzz
Why Data Privacy Based on Consent Is Impossible
Take the Cambridge Analytica case. Very enlightened people complained, “Facebook shared the information without consent.” But was it really about consent? Based on all our behaviors, all the time, I promise you, if they had sought consent, they’d have gotten it. That’s not what outraged us. What outraged us was what Cambridge Analytica was doing, and has done, to democratic institutions and the fact that Facebook was so craven they didn’t care.
facebook  consent  privacy  Cambridge-Analytica  data 
21 days ago by jomc
GDPR Consent Management Solutions for Publishers, Advertisers & Agencies.
Quantcast Choice is a FREE Consent Management Solution designed to help publishers, marketers and website owners obtain and manage consumers' consent in compliance with the General Data Protection Regulation Act, also know as GDPR
Consent  Management  GDPR  Solutions 
21 days ago by Tomfly58
The New Birds and Bees: Teaching Kids About Boundaries and Consent - The New York Times
When children expect to ask, give and deny consent at their own discretion, sexual transgressions stick out as clear violations.

Teaching consent has a protective effect against child sexual abuse by showing children that they can trust their instincts: When a grown-up or anyone else touches them in a way that makes them uncomfortable, they don’t have to cooperate. They have the right to say no.
sex  education  kids  assault  consent  parenting 
21 days ago by emmacarlson

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