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aries1988 : dementia   2

Her Time
while FEN guides were there to help people die, they couldn’t help in the literal sense. Though suicide is legal in every state, the act of helping someone commit the act is illegal. The rule that FEN’s leadership came up with — the rule they hoped would keep the organization free from prosecution — was that exit guides could instruct and advise and sit with but could not touch a client.

According to FEN rules, clients didn’t need to be terminally ill or even dying, in the immediate sense, as long as they were suffering “intolerably” and “unbearably.”

In Brian’s civilian life, he heard people say all the time that if they got dementia, they’d kill themselves or get someone else to kill them — that they were not going there. OK then, he would think, so what is your plan?
It made sense to Brian that the search for an alternative path was happening beyond the official gaze of the courtroom and the hospital ethics committee. People were scared, and they could find nobody to hold their hands and help them find a way out.

“She doesn’t want to lose her selfhood,” Brian said. “She sees it happening.” Brian believes that nobody wants to die, only sometimes they can’t live this way.

David had been an antiques trader before going into construction, and his house was filled with old things. Sometimes, Debra and David imagined that they had known each other in the Victorian era but that their relationship had been cut short for reasons they didn’t know and that God had sent them back to earth to meet again.

It was hard to think about money, though, because it was getting harder to think in straight lines. Debra’s thoughts felt like seeds that never germinated. Her attention was flighty; her stories lost their narrative thread. Sometimes, when she was at her computer, she’d come to suddenly and find that she had typed a page of gibberish. “I call them brain farts, for lack of a better description.”

She thought she probably wouldn’t, that she would have no self-respect left, by then, to offend. But still, she believed that some part of her would continue to hurt from all the small indignities of life in an institution where nobody loved her.

Patients in Oregon are more likely to request aid in dying for existential reasons than for physical ones.

Dutch doctors debate whether these two versions of the patient — the “then-self” before dementia and the “now-self” with dementia — are even the same person. If they are not, then why does the one get to dictate choices for the other?

Later, there was just one strange thing that Lieutenant Horton found hard to shake. It was nice out, but all the curtains were drawn.
aging  suicide  dementia  death  health  law  california  life  couple  house 
11 weeks ago by aries1988
My father Pete, his dementia and our last year together

There is no cure, as yet. Alzheimer’s disease, the most common cause of dementia, is variously described as having three to seven stages. Whatever. The last one is the shortest and ends in death. Some call the disease the longest goodbye as the average individual may live eight to 10 years after diagnosis.

Reaching and maintaining a state of contentment is the theme that dominates Contented Dementia by Oliver James, a clinical psychologist and bestselling author.
story  father  son  dementia  death 
december 2017 by aries1988

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