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csrollyson : nhl   45

MY CANCER JOURNEY - arlenecotter.com
Must-see very unusual emotional account of NHL treatment cancer journey
sh1  ws2  ws3  NHL  journey  surprise  exceptional  bullsi  death  family  friend  transplant  allogenic  2ndline  18sbx 
february 2019 by csrollyson
Finding Freedom: My Cancer Journey and my PICC - Care+Wear
Great specific story about patient's PICC line during multiple rounds of chemo
NHL  sh1  chemotherapy  PICC  yoga  18sbx 
february 2019 by csrollyson
Three Months with Cancer: Love, Ideas and Vulnerability
Very frank, vulnerable account of his emotions during NHL treatment, and the role of mission in his recovery [no CAR-T though]
sh1  nhl  love  relationship  advocacy  suicide  highschool  mission  church  politics  exceptional  bullsi  18sbx 
february 2019 by csrollyson
The One Thing That Patients Need The Most – Ruth Henderson – Medium
Superb caregiver account with *both parents* one w NHL + eye-popping examples of care lapses
sh1  sh2  advocacy  18sbx  nhl  canada  example  story  dementia  family  bullsi  patient  caregiver 
february 2019 by csrollyson
Corbella: Boy’s life at risk simply because he lives in Alberta | Calgary Herald
Political fight to have CAR-T for boy in Alberta, which doesn't pay for care in other provinces (CAR-T trial in Toronto)
cartcell  canada  alberta  province  healthcare  insurance  clinical  trial  politics  q3  2018  toronto  18sbx  NHL  SH2 
february 2019 by csrollyson
About Grady Vogt : My Cancer Story
Superb NHL patient blog, so authentic, and more raw than most, plus detailed. At present he is in remission after second line
nhl  sh1  bullsi  blog  journey  1stline  2ndline  18sbx 
february 2019 by csrollyson
My Cancer Story: An Interview With My Younger Brother - Shadow's Edge
Unique post: sister (patient) interviews her younger brother about his experience as sibling during her treatment
nhl  sh1  patient  blog  story  sibling  brother  18sbx  school  family  bullsi 
february 2019 by csrollyson
Lympho Bob: CAR-T posts
Voluminous blog of NHL patient includes his opinions and thoughts about CAR-T; he has NOT had CAR-T, was cured in 2010-2011
sh1  blog  nhl  patient  journey  experience  bullsi  2010  18sbx 
february 2019 by csrollyson
Dan's Story: My Experience With CAR T-Cell Therapy | Non-Hodgkin Lymphoma | Patient Power
NHL patient and his wife interviewed on video about their whole journey, which ended with CAR-T and total remission
sh2  sh1  nhl  ws1  ws2  ws3  bullsi  video  18sbx  bullsi2 
january 2019 by csrollyson
For One Hematologist, No Disease Progressions in Follicular Lymphoma With Rituximab Maintenance - The ASCO Post
Hematologist uses alternative treatment approach to Follicular NHL cases, and has 100% success rate after 25 years
sh3  alternative  therapy  Follicular  NHL  lymphoma  rituximab  patient  results  18sbx  hematology 
january 2019 by csrollyson
Mike Delia: Skiing with the Grandkids Thanks to CAR T-Cell Therapy
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  video  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
Fight All the Way | Moffitt
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
CAR-T Therapy: Lifeline to A Cure? - Cancer Health
2 YESCARTA case studies for NHL and PMBCL patients highlight ATC interactions and patient and ATC physician quotes
patient  yescarta  casestudy  sh1  sh4  ATC  NHL  transplant  ASCT  radiation  referral  ws1  ws2  cartcell  18sbx  PMBCL  Q1  2018  bullsi2  bullsi 
january 2019 by csrollyson
Poland woman is cancer free after participating in clinical trial
Local news reports success at first patient of CSR-T at University Hospitals
nhl  cartcell  18sbx  q4  2018  remission  lymphoma 
january 2019 by csrollyson
The Use of Chimeric Antigen Receptor T Cells in Patients With Non-Hodgkin Lymphoma – Hematology & Oncology
After a review of CAR-T use cases, risks and efficacies, author describes basic requirements for ATCs to prepare to offer the treatment
sh4  cartcell  ATC  yescarta  kymriah  18sbx  nhl  treatment  review 
january 2019 by csrollyson
New to the forum! DLBCL CAR-T - Lymphoma.com - Lymphoma Support and Help Forums!
Superb discussion started by caregiver whose husband is poised for Car-T to treat refractory DLBCL
cartcell  dlbcl  nhl  bullsi2  discussion  ws1  sh1  sh2  18sbx  chemotherapy 
january 2019 by csrollyson
When lymphoma comes back | Topics, Lymphoma, Cancer, People's Experiences | healthtalk.org
Authentic natural short vids [transcripts] of patient stories of learning about their relapses; reflections on first-line treatment and second-line
lymphoma  nhl  patient  stories  relapse  1stline  2ndline  emotion  family  uk  18sbx  cancer  ws1  sh1 
january 2019 by csrollyson
How I manage patients with relapsed/refractory diffuse large B cell lymphoma
Superb in-depth paper presents patient journey from SH3/SH4 perspective through first-line, second-line, and third-line stages by discussing studies. Mentions CAR-T at conclusion
sh3  sh4  oncologist  physician  NHL  DLBCL  refractory  relapse  2ndline  3rdline  comparison  chemotherapy  transplant  highdose  bullsi  18sbx  bullsi2 
january 2019 by csrollyson
Unmet Needs in Treating Relapsed NHL
Relatively brief discussion interesting as shared oncologist point of view; does not mention car-t
ATC  physician  18sbx  nhl  dlbcl  relapse  refractory  treatment  cancer  pointofview  2ndline  3rdline 
january 2019 by csrollyson
Survivorship: After Non-Hodgkin Lymphoma Treatment Ends
NHL patient and her oncologist share their perspectives on treatment, 6 rounds RCHOP, using patient's case as context. CAR-T mentioned
patient  oncologist  interview  video  bullsi  cartcell  NHL  journey  RCHOP  chemotherapy  emotion  18sbx 
january 2019 by csrollyson
Regaining My Life After a Diagnosis of Non‑Hodgkin Lymphoma
Young NHL patient tells his story of lymphoma and relapse; and second line treatment HDC/ABMT
patient  story  rchop  nhl  relapse  nurse  18sbx  community  emotion  sh1  ws1  hdcbmt  transplant  transfusion  stageii  lymphoma  ATC  travel  relocation  immigration  philippines  family  insurance  hdcabmt  bullsi 
january 2019 by csrollyson
Non-hodgkins lymphoma - Leukemia and Lymphoma - MedHelp
Some detail about the case of OP's father's multiple experiences with NHL that seemed to transform to HL
nhl  hl  discussion  patient  sh2  chemotherapy  biopsy  itch  tfl  lymphoma  petct  ws1  2ndline  18sbx 
january 2019 by csrollyson
indolent non-hodgkins lymphoma - Cancer - MedHelp
Thread includes physician and several patients and caregivers
nhl  patient  sh1  sh2  sh3  oncologist  physician  2008  bullsi  18sbx  cancer  community  forum 
january 2019 by csrollyson
Non-Hodgkin Lymphoma Stages
Brief explanation of NHL classification system (Stage I-IV)
NHL  cancer  reference  18sbx  taxonomy  classification  treatment  disease  development 
january 2019 by csrollyson

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