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Mapping the Patient Journey: A Case Study
Very useful: How to use and design #patient #experience #journey #maps to put touchpoints into a narrative and identify breakdowns. How to design the map + example #agile #digital #ethnography
healthcare  patient  journey  map  casestudy  bullsi  howto  design  value  proposition  provider  touchpoint  social  media  medical  urology  persona  csr19 
may 2019 by csrollyson
On the Road - Inova Fair Oaks Hospital - The Beryl Institute - Improving the Patient Experience
Inspiring #casestudy of a #patient #experience #journey initiative at a Virginia #hospital + example #service #design artifacts #healthcare #cx
patient  customer  experience  journey  map  example  casestudy  hospital  virginia  emergency  hall  collaboration  reflection  healthcare  service  design  csr19 
april 2019 by csrollyson
Patient Experience Study | GE Healthcare & Prophet
Survey of US #healthcare patients & providers reveals grim #patient #experience: providers think they're doing okay, but patients disagree. BTW, firms can improve studies with #agile #digital #ethnography (it's more patient-centric ;^) #CX
patient  experience  healthcare  usa  survey  marketing  research  report  Statistics  2016  customer  csr19 
april 2019 by csrollyson
Better patient experience hinges on improving financial journey
From the Duh Dept: To improve #patient #experience, transform #financial experience, transparency. BTW, firms can improve studies with #agile #digital #ethnography (it's more patient-centric ;^) #CX
healthcare  usa  patient  experience  finance  insurance  payer  stream  2018  survey  customer  Research 
april 2019 by csrollyson
Journey mapping as a tool to transform patient experience | AMS Insights
Example: legacy qualitative market research relies on few participants for interviews, diary studies & surveys: #agile #digital #ethnography improves research design by evaluating much more patient experiences
patient  customer  experience  marketing  survey  dairy  interview  traditional  healthcare  research  primary  journey  map  qualitative  knee  surgery 
april 2019 by csrollyson
Health Online 2013 | Pew Research Center
Long in the tooth but useful; most findings have likely increased as online/digital adoption deepens
2013  healthcare  online  behavior  research  patient  customer  Experience 
march 2019 by csrollyson
The New Face of Audience Journey Mapping in Healthcare - Forum for Healthcare Strategists
POV espouses using "brand journalism" to reach consumers earlier in their decision journeys; cites 83% [all] customers access digital/web late in their journeys; 33% healthcare patients self-diagnose online
healthcare  marketing  customer  patient  experience  pointofview  journey  content  q3  2018 
march 2019 by csrollyson
Page 17 – Patient Empowerment Network
Infographic not specific to cancer or CAR-T but useful background on how patients approach getting treatment
q1  2017  infographic  patient  sh1  social  media  research  sh2  ws1  18sbx  survey 
february 2019 by csrollyson
Great New Six Months post CAR-T – CLL Society
Doctor-patient talks about his CAR-T experience; Upenn "product" not yescarta nor kymriah
18sbx  sh1  ws3  bullsi  bullsi2  physician  patient  2018  cartcell 
february 2019 by csrollyson
The Role of the Oncology Nurse in CAR T-Cell Therapy
Issue and examples of nurses' roles in managing CAR-T side effects; some nice detail
ws3  atc  nurse  patient  education  cartcell  18sbx  side  effect 
february 2019 by csrollyson
Too Young For Cancer? | Everyday Health
A cancer physician and patient discuss how healthcare has neglected young adults in cancer research and treatment: they aren't young old people
millennial  cancer  social  stigma  treatment  fertility  interview  physician  patient  sh1  sh3  advocacy  young  adult  18sbx 
february 2019 by csrollyson
Oncology Nurse Inspires Patients, Health Care Team
Oncology nurse gets cancer, realizes she hasn't been empathic with her patients ("Now I get it")
oncology  nurse  empathy  patient  18sbx  story 
february 2019 by csrollyson
What Patients Say, What Doctors Hear. Doctor-patient Communication
Physician shares experiences and statistics of patient–physician communication
medicine  sh1  sh3  18sbx  communication  Statistics  example  social  memory  physician  patient  EMR  history 
february 2019 by csrollyson
The One Thing That Patients Need The Most – Ruth Henderson – Medium
Superb caregiver account with *both parents* one w NHL + eye-popping examples of care lapses
sh1  sh2  advocacy  18sbx  nhl  canada  example  story  dementia  family  bullsi  patient  caregiver 
february 2019 by csrollyson
FAQs — MY CANCER ADVOCATE
Another avenue for studying care hand-offs [continuity of care]
cancer  patient  sh1  sh2  advocate  faq  18sbx  ws2  ws3  handoff  COC 
february 2019 by csrollyson
My Cancer Story: An Interview With My Younger Brother - Shadow's Edge
Unique post: sister (patient) interviews her younger brother about his experience as sibling during her treatment
nhl  sh1  patient  blog  story  sibling  brother  18sbx  school  family  bullsi 
february 2019 by csrollyson
Lympho Bob: CAR-T posts
Voluminous blog of NHL patient includes his opinions and thoughts about CAR-T; he has NOT had CAR-T, was cured in 2010-2011
sh1  blog  nhl  patient  journey  experience  bullsi  2010  18sbx 
february 2019 by csrollyson
Car T cell treatment : lymphoma
Patients and caregivers talking about CAR-T side effects and "value"
sh1  sh2  bullsi  ws2  patient  caregiver  discussion  forum  18sbx  bullsi2 
february 2019 by csrollyson
For One Hematologist, No Disease Progressions in Follicular Lymphoma With Rituximab Maintenance - The ASCO Post
Hematologist uses alternative treatment approach to Follicular NHL cases, and has 100% success rate after 25 years
sh3  alternative  therapy  Follicular  NHL  lymphoma  rituximab  patient  results  18sbx  hematology 
january 2019 by csrollyson
Mike Delia: Skiing with the Grandkids Thanks to CAR T-Cell Therapy
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  video  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
CAR-T and Follicular Non-Hodgkin's Lymphoma | CAR-T news and links as we encounter them… | Page 2
Follicular NHL CAR-T Patient created this info-blog with significant detail about WS3, After CAR-T
patient  sh1  blog  cartcell  ws3  bullsi  information  resources  18sbx 
january 2019 by csrollyson
Fight All the Way | Moffitt
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
'Super T-Cell' Therapy Stops Patient's Rare, Aggressive Lymphoma | OSUCCC – James
DLBCL patient case study for CAR-T clinical trial; an ATC ad with little detail
DLBCL  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
CAR-T Therapy: Lifeline to A Cure? - Cancer Health
2 YESCARTA case studies for NHL and PMBCL patients highlight ATC interactions and patient and ATC physician quotes
patient  yescarta  casestudy  sh1  sh4  ATC  NHL  transplant  ASCT  radiation  referral  ws1  ws2  cartcell  18sbx  PMBCL  Q1  2018  bullsi2  bullsi 
january 2019 by csrollyson
About – Chemo log
Superb detailed blog series by DLBCL patient in Silicon Valley
dlbcl  blog  patient  sh1  ws1  bullsi  18sbx  cartcell  highdose  chemotherapy  transplant 
january 2019 by csrollyson
decisions – getting closer and UCSF second opinion – Chemo log
Very detailed post on patient's cancer treatment decisions: here, CAR-T as second line vs. HDC/ASCT
patient  sh1  bullsi  dlbcl  ws1  chemotherapy  2ndline  3rdline  18sbx  insurance  hospital  ATC  sh4  bullsi2 
january 2019 by csrollyson
How the CAR-T Trial Gave Me My Life Back (Part 1) | Patient Power
Detailed story of 13 relapses to chemo, self-referral, searching for clinical trial and finally getting into one [multiple myeloma]
ws2  18sbx  referral  clinical  trial  bullsi  patient  sh1  family  friend  travel  chemotherapy  relapse  refractory 
january 2019 by csrollyson
Car-T treatment - Lymphoma.com - Lymphoma Support and Help Forums!
Several caregivers and patients discussing CAR-T as it intersects journeys
cartcell  ws1  ws2  patient  sh1  sh2  caregiver  bullsi2  forum  discussion  usa  canada  medical  tourism  ATC  18sbx 
january 2019 by csrollyson
Nice To Meet You, I'm Radiant Racheli
Post #1 of serial posts on Lymphoma treatment journey
blog  lymphoma  hodgkin  cancer  sh1  ws1  18sbx  patient 
january 2019 by csrollyson
Cancer and Dating: Excerpts from the Journal a Survivor Kept
Young lymphoma patient blog series on her journey; this post on dating during treatment is poignant and even funny
patient  journey  lymphoma  blog  18sbx  ws1  millennial  cancer  romance  dating  application  losangeles  travel  ATC 
january 2019 by csrollyson
Why you should always have cancer friends - Lymphoma Barbie
Terrific insouciant Lymphoma patient's blog covers all journey phases; this post on the importance of support group
lymphoma  cancer  emotion  friend  patient  sh1  ws1  support  attitude  18sbx  bullsi 
january 2019 by csrollyson
A letter to all of the doctors that misdiagnosed me - Lymphoma Barbie
Yes, Hodgkin's, but the story has some detail and could easily be NHL + many other blog posts
patient  story  misdiagnosis  stageiv  lymphoma  physician  ATC  chemotherapy  radiation  2016  blog  bullsi  18sbx 
january 2019 by csrollyson
My Experience With Lymphoma - The Atlantic
Detailed patient journey with Lymphoma in his brain; deciding on treatment options, weighing life decisions, physical and emotional impacts
lymphoma  patient  story  journey  brain  sh1  2016  transplant  family  community  treatment  diagnosis  work  bullsi  support  18sbx 
january 2019 by csrollyson
When lymphoma comes back | Topics, Lymphoma, Cancer, People's Experiences | healthtalk.org
Authentic natural short vids [transcripts] of patient stories of learning about their relapses; reflections on first-line treatment and second-line
lymphoma  nhl  patient  stories  relapse  1stline  2ndline  emotion  family  uk  18sbx  cancer  ws1  sh1 
january 2019 by csrollyson
21 Days Times 6
Very long, detailed blog of patient's journey from 2012; she is articulate and detailed, discussions of physician involvement from PCP to oncologist to ATC
patient  journey  DLBCL  lymphoma  chemotherapy  canada  18sbx  blog  ws1 
january 2019 by csrollyson
Non-Hodgkin’s lymphoma survivor: CAR T-cell therapy clinical trial put me in remission | MD Anderson Cancer Center
CAR-T-cell survivor briefly describes Emily Dumer's journey; interesting: after failure of chemo and a transplant at ATC, *local* doctor informs her about CAR-T
bullsi2  hospital  ATC  patient  story  cartcell  clinical  trial  2015  sh1  ws3  ws1  ws2  chemotherapy  transplant  DLBCL  RCHOP  ASCT  bullsi  18sbx 
january 2019 by csrollyson
Lymphoma Types, Symptoms, Signs & Survival Rates
Short (some caregiver) patient descriptions of discovering their lymphomas; useful because physician errors and attitudes show their effect
lymphoma  patient  story  onset  suspicion  sh1  sh2  sh3  physician  oncologist  PCP  diagnosis  cancer  18sbx  ws1 
january 2019 by csrollyson
Survivorship: After Non-Hodgkin Lymphoma Treatment Ends
NHL patient and her oncologist share their perspectives on treatment, 6 rounds RCHOP, using patient's case as context. CAR-T mentioned
patient  oncologist  interview  video  bullsi  cartcell  NHL  journey  RCHOP  chemotherapy  emotion  18sbx 
january 2019 by csrollyson
Regaining My Life After a Diagnosis of Non‑Hodgkin Lymphoma
Young NHL patient tells his story of lymphoma and relapse; and second line treatment HDC/ABMT
patient  story  rchop  nhl  relapse  nurse  18sbx  community  emotion  sh1  ws1  hdcbmt  transplant  transfusion  stageii  lymphoma  ATC  travel  relocation  immigration  philippines  family  insurance  hdcabmt  bullsi 
january 2019 by csrollyson
Non-hodgkins lymphoma - Leukemia and Lymphoma - MedHelp
Some detail about the case of OP's father's multiple experiences with NHL that seemed to transform to HL
nhl  hl  discussion  patient  sh2  chemotherapy  biopsy  itch  tfl  lymphoma  petct  ws1  2ndline  18sbx 
january 2019 by csrollyson
indolent non-hodgkins lymphoma - Cancer - MedHelp
Thread includes physician and several patients and caregivers
nhl  patient  sh1  sh2  sh3  oncologist  physician  2008  bullsi  18sbx  cancer  community  forum 
january 2019 by csrollyson
LupusCA + Patientslikeme
New partnership b/t PatientsLikeMe and LupusCA - #digitalme
collaboration  healthcare  lupus  partnership  medical  community  patient 
july 2018 by csrollyson
The CAR T-cell Chicago story: One year later – Science Life
Hospital-produced patient story of successful CAR T treatment; also discusses how ATC and community oncologist collaborated
ATC  18sbx  story  patient  comdoc  atcdoc  bullsi  ws1  ws2  ws3  sh1  sh3  sh4  uchicago 
june 2018 by csrollyson
Rushika Fernandopulle of Iora Health (Tales from the Trenches)
Inspiring: how Iora Health cares for patients, how its non fee-for-service model is revolutionary
matterchi  ceo  talesofthetrenches  founder  interview  healthcare  provider  clinic  trust  patient  care  model  massachusetts  startup  2017  Q3 
december 2017 by csrollyson
Transforming Health Care One Book Group at a Time - Iora Health
Health coach writes about innovation @iorahealth + example experiment with helping patient group w weight loss
iorahealth  story  coach  weight  loss  patient  group  behavior  interview  modification  2015  example 
september 2017 by csrollyson
Medicaid recipients in Illinois tough to track - In Other News - Crain's Chicago Business
Excellent analysis of #Illinois #Medicaid operational issues: many Patients don't want care or are hard to find
illinois  healthcare  insurance  payer  medicaid  Statistics  q3  2017  report  exceptional  finance  patient  privacy  aids 
july 2017 by csrollyson
The Conversation Placebo - The New York Times
Talking to a doctor lessons pain for large portions of patients [several studies linked] #healthcare #medicine
medicine  conversation  physician  patient  study  research  q1  2017  placebo  ethics  healthcare 
march 2017 by csrollyson
Keeping Loved Ones In The Loop During Cancer Treatment
How a private blog for updating family/friends on loved ones' health status turned into a major business
casestudy  healthcare  family  friend  social  network  medicine  community  privacy  2008  Q2  physician  patient  consumer  cancer  status 
june 2016 by csrollyson
The 'significant impact' of digital tools on health care | Devex
How #healthcare providers are using #digital to connect with #patients, improve outcomes
digital  healthcare  patient  provider  video  pointofview  q2  2016  medicine 
june 2016 by csrollyson
Society for Participatory Medicine
Epicenter of global #participatory #medicine movement in #healthcare
medicine  healthcare  patient  physician  provider  movement  participation  cco  2cdo  2csra 
may 2016 by csrollyson
The Salzburg Statement on Shared Decision Making | e-Patients.net
MUSTsee: Declaration of #patient #rights in #participatory #medicine #SalzburgStatement
healthcare  patient  physician  provider  collaboration  declaration  participation  medicine  social  media  europe 
may 2016 by csrollyson
ACOR.org - Association of Cancer Online Resources
Online collaborative community for #cancer patients and families
medicine  social  media  network  patient  cancer  healthcare  forum  community  collaboration 
may 2016 by csrollyson
Why Bad Stories Can Trump Good Science (with images, tweets) · csrollyson · Storify
[coverage] How physicians & scientists need to connect better w broad audiences vis a vis #patient #empowerment
healthcare  medicine  physician  provider  patient  public  communication  howto  csrblogcomment  design  science  social  media  empowerment  analysis  pointofview  2015  Q2  chicago  event 
april 2016 by csrollyson
Caring for Older Adults in a Value-Based Model
Inspiring startup revolutionizing #healthcare - They Improve outcomes for poor elderly patients by caring more & cutting cost
healthcare  chicago  disruption  startup  elderly  medicare  medicaid  model  outcome  patient  provider  customer  experience  operations  physician  nurse  2016  q1  clinic  2sbs  2cdo  cco 
march 2016 by csrollyson
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