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Page 17 – Patient Empowerment Network
Infographic not specific to cancer or CAR-T but useful background on how patients approach getting treatment
q1  2017  infographic  patient  sh1  social  media  research  sh2  ws1  18sbx  survey 
february 2019 by csrollyson
Connecting Healthy Adults to People With Blood Cancers
Article about CAR-T for ALL + post on transplant patients and outcomes
18sbx  bullsi  ws1  sh4  ALL  transplant 
february 2019 by csrollyson
My Story - Two Strong
Pregnant mother learns she has DLBCL during first trimester. In remission after first line, but nice detail about pregnancy, home life with cancer
sh1  ws1  bullsi  blog  pregnancy  dlbcl  cancer  journey  18sbx  1stline  family  infection 
february 2019 by csrollyson
CAR T for DLBCL: What to Expect
WebMD's very short simple entry on CAR-T. Useful because thousands of patients and caregivers probably start here
sh1  sh2  ws1  ws2  reference  18sbx 
january 2019 by csrollyson
Dan's Story: My Experience With CAR T-Cell Therapy | Non-Hodgkin Lymphoma | Patient Power
NHL patient and his wife interviewed on video about their whole journey, which ended with CAR-T and total remission
sh2  sh1  nhl  ws1  ws2  ws3  bullsi  video  18sbx  bullsi2 
january 2019 by csrollyson
Hodgkin’s Lymphoma and the Day I was Diagnosed
Yes, Hodgkins, but totally applicable to what it's like to learn you have cancer + interaction with her physician (PCP/GP)
diagnosis  hodgkin  lymphoma  emotion  physician  18sbx  ws1 
january 2019 by csrollyson
Mike Delia: Skiing with the Grandkids Thanks to CAR T-Cell Therapy
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  video  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
Fight All the Way | Moffitt
NHL patient case study for CAR-T clinical trial; an ATC ad with little detail
NHL  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
'Super T-Cell' Therapy Stops Patient's Rare, Aggressive Lymphoma | OSUCCC – James
DLBCL patient case study for CAR-T clinical trial; an ATC ad with little detail
DLBCL  patient  sh1  ws1  ws2  ws3  advertising  ATC  18sbx  clinical  trial  example 
january 2019 by csrollyson
CAR-T Therapy: Lifeline to A Cure? - Cancer Health
2 YESCARTA case studies for NHL and PMBCL patients highlight ATC interactions and patient and ATC physician quotes
patient  yescarta  casestudy  sh1  sh4  ATC  NHL  transplant  ASCT  radiation  referral  ws1  ws2  cartcell  18sbx  PMBCL  Q1  2018  bullsi2  bullsi 
january 2019 by csrollyson
About – Chemo log
Superb detailed blog series by DLBCL patient in Silicon Valley
dlbcl  blog  patient  sh1  ws1  bullsi  18sbx  cartcell  highdose  chemotherapy  transplant 
january 2019 by csrollyson
decisions – getting closer and UCSF second opinion – Chemo log
Very detailed post on patient's cancer treatment decisions: here, CAR-T as second line vs. HDC/ASCT
patient  sh1  bullsi  dlbcl  ws1  chemotherapy  2ndline  3rdline  18sbx  insurance  hospital  ATC  sh4  bullsi2 
january 2019 by csrollyson
Car-T treatment - Lymphoma.com - Lymphoma Support and Help Forums!
Several caregivers and patients discussing CAR-T as it intersects journeys
cartcell  ws1  ws2  patient  sh1  sh2  caregiver  bullsi2  forum  discussion  usa  canada  medical  tourism  ATC  18sbx 
january 2019 by csrollyson
Nice To Meet You, I'm Radiant Racheli
Post #1 of serial posts on Lymphoma treatment journey
blog  lymphoma  hodgkin  cancer  sh1  ws1  18sbx  patient 
january 2019 by csrollyson
Cancer and Dating: Excerpts from the Journal a Survivor Kept
Young lymphoma patient blog series on her journey; this post on dating during treatment is poignant and even funny
patient  journey  lymphoma  blog  18sbx  ws1  millennial  cancer  romance  dating  application  losangeles  travel  ATC 
january 2019 by csrollyson
New to the forum! DLBCL CAR-T - Lymphoma.com - Lymphoma Support and Help Forums!
Superb discussion started by caregiver whose husband is poised for Car-T to treat refractory DLBCL
cartcell  dlbcl  nhl  bullsi2  discussion  ws1  sh1  sh2  18sbx  chemotherapy 
january 2019 by csrollyson
Why you should always have cancer friends - Lymphoma Barbie
Terrific insouciant Lymphoma patient's blog covers all journey phases; this post on the importance of support group
lymphoma  cancer  emotion  friend  patient  sh1  ws1  support  attitude  18sbx  bullsi 
january 2019 by csrollyson
When lymphoma comes back | Topics, Lymphoma, Cancer, People's Experiences | healthtalk.org
Authentic natural short vids [transcripts] of patient stories of learning about their relapses; reflections on first-line treatment and second-line
lymphoma  nhl  patient  stories  relapse  1stline  2ndline  emotion  family  uk  18sbx  cancer  ws1  sh1 
january 2019 by csrollyson
21 Days Times 6
Very long, detailed blog of patient's journey from 2012; she is articulate and detailed, discussions of physician involvement from PCP to oncologist to ATC
patient  journey  DLBCL  lymphoma  chemotherapy  canada  18sbx  blog  ws1 
january 2019 by csrollyson
Non-Hodgkin’s lymphoma survivor: CAR T-cell therapy clinical trial put me in remission | MD Anderson Cancer Center
CAR-T-cell survivor briefly describes Emily Dumer's journey; interesting: after failure of chemo and a transplant at ATC, *local* doctor informs her about CAR-T
bullsi2  hospital  ATC  patient  story  cartcell  clinical  trial  2015  sh1  ws3  ws1  ws2  chemotherapy  transplant  DLBCL  RCHOP  ASCT  bullsi  18sbx 
january 2019 by csrollyson
Lymphoma Types, Symptoms, Signs & Survival Rates
Short (some caregiver) patient descriptions of discovering their lymphomas; useful because physician errors and attitudes show their effect
lymphoma  patient  story  onset  suspicion  sh1  sh2  sh3  physician  oncologist  PCP  diagnosis  cancer  18sbx  ws1 
january 2019 by csrollyson
Regaining My Life After a Diagnosis of Non‑Hodgkin Lymphoma
Young NHL patient tells his story of lymphoma and relapse; and second line treatment HDC/ABMT
patient  story  rchop  nhl  relapse  nurse  18sbx  community  emotion  sh1  ws1  hdcbmt  transplant  transfusion  stageii  lymphoma  ATC  travel  relocation  immigration  philippines  family  insurance  hdcabmt  bullsi 
january 2019 by csrollyson
Non-hodgkins lymphoma - Leukemia and Lymphoma - MedHelp
Some detail about the case of OP's father's multiple experiences with NHL that seemed to transform to HL
nhl  hl  discussion  patient  sh2  chemotherapy  biopsy  itch  tfl  lymphoma  petct  ws1  2ndline  18sbx 
january 2019 by csrollyson
The CAR T-cell Chicago story: One year later – Science Life
Hospital-produced patient story of successful CAR T treatment; also discusses how ATC and community oncologist collaborated
ATC  18sbx  story  patient  comdoc  atcdoc  bullsi  ws1  ws2  ws3  sh1  sh3  sh4  uchicago 
june 2018 by csrollyson
It's not too late: 5 last-minute tips for paying for #college
It's not too late: 5 last-minute tips for paying for #college
plan  ws2  ws1  select  16ccc  bullsi  finance  work  study  loan  aid  scholarship 
september 2017 by csrollyson
Short & sweet: How #parents can help w the College Process—and maintain sanity ^cr
Short & sweet: How #parents can help w the College Process—and maintain sanity ^cr
16ccc  plan  apply  parent  student  howto  list  twt  bullsi  visit  select  ws1 
august 2017 by csrollyson
Hey #art #design #creative college students: Get this scholarship site on your radar ^cr
Hey #art #design #creative college students: Get this scholarship site on your radar ^cr
16ccc  art  design  scholarship  list  website  reference  finance  bullsi  twt  ws1  plan  select  apply 
august 2017 by csrollyson
Superb advice: Audition Do's & Don't's | The College Audition Blog ^cr
Nice long lists! Audition Do's & Don't's | The College Audition Blog
bullsi  reference  16ccc  sh2  ws1  apply  audition  howto  advice  twt 
august 2017 by csrollyson
Never Forget That This is YOUR Journey and Your Journey Alone
Beautiful: How #parents of #college #students can own their emotional journeys, letting go
mother  parent  highschool  college  16ccc  family  bullsi  emotion  example  ws1  ws2  plan 
august 2017 by csrollyson
College admissions: Social media can actually help students - CNN
How #college #admissions depts use #socialmedia during selection process [survey]
16ccc  social  media  admission  college  ws1  highschool  apply  plan  visit  survey  2017  q1  bullsi 
august 2017 by csrollyson
Here's what I learned after 23 colleges ^cr
Great insight and detail abt #college #visits from extensive personal experience
16ccc  visit  bullsi  ws1  mother  parent  student  story  example  travel  twt 
august 2017 by csrollyson
Woman Applied to 100 Scholarships | POPSUGAR Career and Finance
SUPERB: How she created a system to apply for (and win) dozens of #college #scholarships
success  hack  16ccc  bullsi  exceptional  plan  ws1  ws2  finance  scholarship  story  ukraine  family 
august 2017 by csrollyson
A Left Take on the College Admission Process : ChapoTrapHouse
Passionate opinions/rants about college admission industry, replete w insights
forum  admission  college  pointofview  counselor  student  rant  standard  test  consultant  16ccc  plan  bullsi  ws1 
august 2017 by csrollyson
SPELMAN COLLEGE VLOG #2| MOVE IN DAY - YouTube
Moving to College experience, nice reflection on life at home [series]
college  move  home  highschool  16ccc  success  hack  vlog  youtube  ws1  ws2  reflection 
august 2017 by csrollyson
How to deal with college anxiety? : ApplyingToCollege
Short empathic discussion to help prospective student with missing home jitters
college  orientation  visit  bullsi  16ccc  forum  reddit  ws1 
july 2017 by csrollyson
Applying to College Guide: Junior Year – Niche Blog
Useful #college #planning guide for Jr year high school students/parents
plan  college  ws1  highschool  test  roadmap  scholarship  list  visit  bullsi 
july 2017 by csrollyson
How To Get The Best College Visit - From Your Home (VIDEO) - College Shortcuts
College visit & exposé service claims to give backroom information [video interviews]
college  visit  16ccc  service  vendor  exposé  video  interviews  ecommerce  ws1  parent  student 
july 2017 by csrollyson
How to Make the Most of Your Campus Visits | CollegeXpress
Substantial how-to guide for how to succeed on #college #visits
college  visit  16ccc  bullsi  howto  guide  student  ws1 
july 2017 by csrollyson
Why College Is Not the Same as It Used to Be
Useful reflection for parents of college students [links]
parent  howto  advice  college  student  study  reference  16ccc  ws1  ws2 
july 2017 by csrollyson
The ‘So What?’ Question | ChronicleVitae
Short guidance for making #college #essays compelling: Answer the "so what" question to get out of your own head
apply  bullsi  16ccc  ws1 
july 2017 by csrollyson
Blog | CollegeVine
More in-depth advice for planning college by mentoring service
advice  plan  college  highschool  16ccc  blog  reference  bullsi  ws1 
july 2017 by csrollyson
(1) CollegeVine - Facebook
Near-peer mentoring service's Facebook Page
apply  help  mentor  facebook  ws1  highschool  college  advice  service  16ccc 
july 2017 by csrollyson
Build Your Own College Rankings
Handy interactive #college #list building tool
college  list  tool  score  aid  16ccc  interactive  plan  ws1 
july 2017 by csrollyson
Plan Ahead | The Common Application
Vital to add to your toolbox, but remember: you'll find nothing unique here, everyone else uses it, too
plan  bullsi  ws1  apply  tool  16ccc 
july 2017 by csrollyson
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